Wasted Days

(Forgive typos, etc. This is not a good day.)

I typed up everything below this paragraph, thought I’d hit Publish, and fell asleep. I’ve slept for about three hours and I feel no more rested than I was before. My muscles are burning, my head aches, and there are minor earthquakes here every few minutes. (That may be one of the biggest keys to my diagnosis, as it is continually blown off by all of my doctors. ) I’m paying for the day of getting ready and going to the party mentioned below. It’s lunchtime and almost time for my afternoon Adderall. Here’s hoping for some writing – or at least “active reading” (as defined in the book “How To Read A Book” this afternoon.

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Last month I finally got a diagnosis that ticks a lot of boxes with regard to symptoms. For a while my diagnosis was fibromyalgia, but I fail two major parts of that disorder:

Fibromyalgia entails “hot spots” of pain, and my pain is general with no one point being worse than another.

Fibromyalgia also makes it possible to recover quickly from exertion.

Therefore, my diagnosis has defaulted to being Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The National Institute for Health casts a broad net regarding symptoms. I will dig much deeper. As time goes on here.

I went to a retirement party last night and my brain and body are punishing me.

These are hard days because my aphasia is so severe and my body aches.

I’m thinking, fuzzily, back to when I had Epstein-Barr syndrome 17 or so years ago. A latent strain of that could have led to this. I know, however, that this is not at all that’s going on.

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I’m going to go fruitlessly rest. Bah